Aimee’s Story
Hi, my name is Aimee and I am a 20-year-old with hydrocephalus. When I was born, I had a 50/50
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A small, passionate, user-led charity working tirelessly to support children and families living with paediatric hydrocephalus. Our mission is to increase awareness, champion better treatment and campaign for improved detection.
Every year 1 in 770 babies will be diagnosed with hydrocephalus, yet there is little awareness of the condition and its impact. We are working to change this through targeted awareness raising.
We campaign for early diagnosis. Through our ‘Get-A-Head’ campaign, we highlight why better awareness of infant head circumference measurement as a tool for early diagnosis of hydrocephalus is vital.
Our Eye Test Awareness explains how eye tests can help aid early diagnosis.
We help children and their families who are directly affected by hydrocephalus. To do this we develop vital resources and provide connection. We deliver peer-to-peer support, so families feel less alone and can meet others from within their community who are going through the same.
We support research and fund training. This improves understanding of the condition and its management amongst front-line health care professionals, which improves patient care.
Hi, my name is Aimee and I am a 20-year-old with hydrocephalus. When I was born, I had a 50/50
We are taking part in the #BigGiveChristmasChallenge From the 3rd December until the 10th of December any donation you make to
On the 15th October 2024 Alex Brewer MP tabled an Early Day Motion (EDM) in the House of Commons calling
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