Registered Charity 1183086

UK Paediatric Hydrocephalus Research Network

This network has been developed following the success and pulpable enthusiasm of the first Parent and Carer Shunt Pathway Steering Group Meeting.  Parents and carers who attended found the experience rewarding and engaging and felt that in addition to the steering group, which has a focus on developing guidelines for the management of paediatric shunt failure that there was more that could be done.

We have therefore launched the UK PHRN which aims to:

  • Bridge the gap between patients, families, clinicians and researchers
  • Amplify patient and family voices
  • Implement research projects which are patient and family-focused
  • Raise the profile of UK pediatric hydrocephalus research.

We welcome engagement from families who would like to get involved. If you’re a clinician or researcher and require PPI input for a study, or would like to co-create a project, please get in touch on: research@harrys-hat.org