This section is for Hydro families, and others who battle to support their child, to share their
experiences of their personal journey. People’s views in this section are their own and do not
necessarily reflect ours or those of Harry’s HAT (sorry about the legal bit!).
However, this is a space for people to learn from each other and to make connections. After all, we believe that parents and carers usually know best! If you would like to Blog for us then please get in touch!
This guest blog is written by 61-year-old Debbie Nobbs, who was diagnosed with hydrocephalus as a baby. Debbie’s hydrocephalus journey started after she contracted Strep
This guest blog is written by 17-year-old Hannah, one of our amazing Harry’s HAT Young Ambassadors. She shares how an eye test identified her hydrocephalus.
Hydrocephalus is a build-up of fluid in the brain, which can put pressure on the brain and cause damage. I’ve learnt a lot about the
Rio became very ill with sickness and headaches in January 2023. After multiple visits and blood tests from the doctors all came back clear, they
Edith was born at 31 weeks via an emergency C-Section and is one of identical triplets. Unfortunately, due to prematurity, she suffered a brain bleed.
When Jethro was diagnosed with hydrocephalus, I was on maternity leave. Thankfully, thoughts of work didn’t even factor into the need to be with my
Rose has congenital hydrocephalus, caused by Aqueductal stenosis. We found out about Rose’s hydrocephalus at our 20-week scan, and she was monitored throughout the pregnancy,
I was diagnosed with congenital hydrocephalus when my mum was 37 weeks pregnant. When the hydrocephalus was discovered, I was delivered by planned caesarean the
From time to time we welcome guest bloggers to share their perspectives.
The views, opinions and positions expressed within these guest posts are those of the authors alone and do not represent those of Harry’s HAT. The accuracy, completeness and validity of any statements made within these articles are not guaranteed. We accept no liability for any errors, omissions or misrepresentations. The copyright of this content belongs to the authors.
The authors of this blog and Harry’s HAT are not responsible for the web sites referred to or linked to from these blogs.