Registered Charity 1183086
The NHS have a detailed section about this condition, the treatment options and possible complications:
The Hydrocephalus and Spina Bifida charity, Shine has produced a series of shunt alert cards for adults and children. You carry the card with you if you’ve had a shunt fitted. The card is useful in a medical emergency if you have symptoms of a blockage or infection. To apply for a shunt alert card, you can fill out a form on the Shine website or call 01733 555 988.
Written by the Shine expert health team, ‘Your Child and Hydrocephalus’ contains over 80 pages of information covering every aspect of your child’s development from birth to 11 years old.
Whether they’re starting to wean, taking their first steps, or making the transition from primary to secondary school, this book will teach you what to expect, what to look out for, and what action to take.
‘The abilities in me, Hydrocephalus’ written by Gemma Keir. This beautifully written and beautifully illustrated book talks about living with Hydrocephalus from a child’s perspective. A brilliant read for any family affected by Hydrocephalus and ideal for siblings and friends too.
The Child Brain Injury Trust is the leading voluntary sector organisation providing emotional and practical support, information and learning opportunities for families and professionals affected by childhood acquired brain injury across the UK.
The Brain Book supports research into brain tumours, traumatic brain injury and other diseases of the nervous system. It aims to improve public and patient understanding of neurological and neurosurgical diseases.
The Hydrocephalus Association is based in America. Its mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
Action against Medical Accidents (AvMA) is a UK charity for patient safety and justice. It works with people who have been affected by medical accidents.
The charity provides free, independent advice and support to people affected by medical accidents (in particular, lapses in patient safety) through a helpline, written casework, and inquest support services.
It also works in partnership with patients, health professionals, the NHS, government departments, and lawyers to improve patient safety and justice for people affected by medical accidents.
You can speak to the healthcare team looking after your child to find out more information about any aspect of hydrocephalus.
More information about hydrocephalus can also be found on the following websites. These are independent of Harry’s HAT.
There are also several hydrocephalus support groups on Facebook for parents and carers. These groups are run by families of children with the condition, and are independent from Harry’s HAT. We are not responsible for the content or information in these groups.