Thank you to families who have kindly shared their personal experience to help highlight the importance of head circumference measurement. Their stories were shared with our research team and approved by the families prior to publication. The names have been changed to protect identities.
We are always keen to share the lived experience of families whose children have been diagnosed with hydrocephalus. On this page we share the stories of families who feel that opportunities to spot their child’s hydrocephalus were missed due to a lack of head circumference measurements and/or awareness of the need to measure a baby’s head. We are however keen to also share examples of good practice so we can be certain that all experiences are highlighted and shared.
If you would be happy to share your experiences, then please do get in touch on: caroline@harrys-hat.org
Just before 6 weeks of age he had a six week check with his health visitor to do the all of the usual baby checks, and this thankfully included a head circumference measurement. This measurement showed that Jethro’s head had increased rapidly from 25% at birth to 75% six weeks later.
