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AGE: 13
AGE DIAGNOSED WITH HYDROCEPHALUS: 3 months
FAVOURITE COLOUR: red.
FAVOURITE FOOD: burgers.
HOBBIES: I play the guitar.
WHY I LOVE THE AMBASSADOR PROJECT: I want to raise awareness of hydrocephalus and make it more known/out there.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS: that it is not something that can just be fixed, that having a shunt doesn’t make this “fixed,” it just sorts it out for as long as the shunt doesn’t get blocked.
AGE: 13
AGE DIAGNOSED WITH HYDROCEPHALUS: 9 months.
FAVOURITE COLOUR: baby blue.
FAVOURITE FOOD: Mcdonalds.
HOBBIES: street dance, acting.
WHY I LOVE THE AMBASSADOR PROJECT: I like being an ambassador because I want to help people who have hydrocephalus. I struggle everyday and I can understand how the struggle can bring you down. If I can get the message out there to children like me-that they are not alone I can help at least one person and it will make me very happy.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS: all parents with hydrocephalus children like us live a very worrying life, my mum says to me that it will make her go grey before her time to be grey!
AGE: 10
AGE DIAGNOSED WITH HYDROCEPHALUS: 3
FAVOURITE COLOUR: purple.
FAVOURITE FOOD: pasta.
HOBBIES: singing, dancing, looking after my pets, I have an axoloti, 2 cats and a dog.
WHY I LOVE THE AMBASSADOR PROJECT: I would like others to know all about hydrocephalus and what it means to have it. I want to raise money for the charities that help to raise awareness.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS: it makes me who I am and without it I would be someone different. I wish people understood that sometimes I feel tired or want to take some time away, it doesn’t mean I am grumpy or not your friend.
AGE: 13
AGE DIAGNOSED WITH HYDROCEPHALUS: 12
FAVOURITE COLOUR: white.
FAVOURITE FOOD: custard.
HOBBIES: musical theatre.
WHY I LOVE THE AMBASSADOR PROJECT: I think it is a great opportunity to share my experience of being diagnosed and living with hydrocephalus. It is also a great way to help others and spread more awareness.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS:
It doesn’t stop me from doing the things I love.
AGE: 12
PERSON IN MY FAMILY THAT HAS HYDROCEPHALUS: brother, James
FAVOURITE COLOUR: lilac or red.
FAVOURITE FOOD: sweetcorn.
HOBBIES: play games on my tablet with friends.
WHY I LOVE THE AMBASSADOR PROJECT: To help my brother and other children like him, to meet other children like me and to help other children that have siblings with hydrocephalus.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS: it can affect the whole family both emotionally and physically.
AGE: 11
AGE DIAGNOSED WITH HYDROCEPHALUS: 13 weeks old.
FAVOURITE COLOUR: blue.
FAVOURITE FOOD: pizza.
HOBBIES: gaming on my Xbox and watching one piece, which is an anime series.
ONE THING THAT I WOULD LIKE EVERYONE TO KNOW ABOUT HYDROCEPHALUS IS: It’s not always easy and not many people understand it.
REASONS FOR BEING AN AMBASSADOR: To make others with hydrocephalus feel like they are not alone.
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