Our Research

Harry’s HAT was created to improve the lives of children and their families who are
affected by hydrocephalus.

To do this, we need to understand the challenges they face and learn about their experiences from their perspective. We do this through family/carer engagement work which includes gathering insights via social media, online questionnaires, group workshops and detailed 1:1 interviews.

We also work with universities, health organisations and other charities to share our findings and work together to drive improved care and support.

Please follow the links for details of our research including accessible summaries of our research findings.