We are Harry’s Hydrocephalus Awareness Trust (Harry’s HAT)

We are a small, yet passionate user-led charity, which works tirelessly to make life better for children with hydrocephalus (known as water on the brain) and the families who love and care for them.

WE DELIVER:

Awareness

Every year 1 in 770 babies will be diagnosed with hydrocephalus, yet there is little awareness of the condition and its impact. We are working to change this through targeted awareness raising.

Campaigns

We campaign for early diagnosis. Through our ‘Get-A-Head’ campaign, we highlight why better awareness of infant head circumference measurement as a tool for early diagnosis of hydrocephalus is vital.

Our Eye Test Awareness explains how eye tests can help aid early diagnosis.

Support

We help children and their families who are directly affected by hydrocephalus. To do this we develop vital resources and provide connection. We deliver peer-to-peer support, so families feel less alone and can meet others from within their community who are going through the same.

Research and Training

We support research and fund training. This improves understanding of the condition and its management amongst front-line health care professionals, which improves patient care.