Yondr
More secondary schools are now using Yondr pouches to support phone free learning, and we want to make families aware
We’re a small, family-led charity dedicated to improving life for children and young people with hydrocephalus. We raise awareness, support better treatment, campaign for earlier diagnosis, and connect families so that no family faces hydrocephalus alone.
Every year around 1 in 770 babies will develop hydrocephalus and recognising it early can change their future.
We share clear, trusted information to help parents, families and professionals spot the signs and know where to turn for help.
We work to make hydrocephalus better understood so every child gets the support they need.
Early diagnosis of hydrocephalus can make a life-changing difference.
Our Get-A-Head campaign calls for every baby’s head size to be measured and recorded to help spot problems early.
Our Eye Test Awareness campaign shows how routine eye checks can reveal early signs so children get help sooner.
No family should feel alone after a diagnosis of hydrocephalus.
We provide practical help, emotional support and trusted information so no one has to face it in isolation.
We connect families, share experiences and work to make sure everyone affected feels understood and supported.
Our research gathers insights from children and families to improve treatment options, such as our shunt pathway work, and to strengthen our campaigns for change.
Our training gives health professionals a better understanding of hydrocephalus so they can provide the best possible care and support.
More secondary schools are now using Yondr pouches to support phone free learning, and we want to make families aware
Harry’s HAT BBC Lifeline appeal We were selected by the BBC for the Lifeline Appeal. Our film aired in 2025.
Hydrocephalus is a build-up of fluid in the brain, which can put pressure on the brain and cause damage. I’ve
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