Mum takes on London Marathon for son who’s survived 850+ medical procedures
Running the iconic 26.2 mile route through London, Catherine Kelly from North Wales hopes to raise vital awareness of hydrocephalus
We’re a small, family-led charity dedicated to improving life for children and young people with hydrocephalus. We raise awareness, support better treatment, campaign for earlier diagnosis, and connect families so that no family faces hydrocephalus alone.
Every year around 1 in 770 babies will develop hydrocephalus and recognising it early can change their future.
We share clear, trusted information to help parents, families and professionals spot the signs and know where to turn for help.
We work to make hydrocephalus better understood so every child gets the support they need.
Early diagnosis of hydrocephalus can make a life-changing difference.
Our Get-A-Head campaign calls for every baby’s head size to be measured and recorded to help spot problems early.
Our Eye Test Awareness campaign shows how routine eye checks can reveal early signs so children get help sooner.
No family should feel alone after a diagnosis of hydrocephalus.
We provide practical help, emotional support and trusted information so no one has to face it in isolation.
We connect families, share experiences and work to make sure everyone affected feels understood and supported.
Our research gathers insights from children and families to improve treatment options, such as our shunt pathway work, and to strengthen our campaigns for change.
Our training gives health professionals a better understanding of hydrocephalus so they can provide the best possible care and support.
Running the iconic 26.2 mile route through London, Catherine Kelly from North Wales hopes to raise vital awareness of hydrocephalus
This guest blog is written by 17-year-old Hannah, one of our amazing Harry’s HAT Young Ambassadors. She shares how an
Surrey mum Michaela Ingram Fuller joins forces with Harry’s HAT and our Get-A-Head campaign to push for earlier diagnosis of