Speaker’s House State Room
On Thursday 6th of February, at the invitation of the Speaker of the House, Sir Lindsay Hoyle MP we held
A small, passionate, user-led charity working tirelessly to support children and families living with paediatric hydrocephalus. Our mission is to increase awareness, champion better treatment and campaign for improved detection.
Every year 1 in 770 babies will be diagnosed with hydrocephalus, yet there is little awareness of the condition and its impact. We are working to change this through targeted awareness raising.
We campaign for early diagnosis. Through our ‘Get-A-Head’ campaign, we highlight why better awareness of infant head circumference measurement as a tool for early diagnosis of hydrocephalus is vital.
Our Eye Test Awareness explains how eye tests can help aid early diagnosis.
We help children and their families who are directly affected by hydrocephalus. To do this we develop vital resources and provide connection. We deliver peer-to-peer support, so families feel less alone and can meet others from within their community who are going through the same.
We support research and fund training. This improves understanding of the condition and its management amongst front-line health care professionals, which improves patient care.
On Thursday 6th of February, at the invitation of the Speaker of the House, Sir Lindsay Hoyle MP we held
This is Ottilie. Ottilie has congenital hydrocephalus, which began to be symptomatic when she was just three weeks old. When
Hi, my name is Aimee and I am a 20-year-old with hydrocephalus. When I was born, I had a 50/50
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