Hydrocephalus Antenatal Screening Survey Results
We feel passionately about early diagnosis of hydrocephalus. We wanted to find out what families feel scanning in later pregnacy and whether that there is more that can be done to help in the early days after diagnosis.
Your hydrocephalus story could help others
We are looking for parents and/or carers of children with hydrocephalus, based in England, to share their experiences of their child’s hydrocephalus diagnosis. We are aiming to put together a book which can be given to families at the point of diagnosis, to help them learn from others who have been where they are […]
Lizzie
Tabby was diagnosed with hydrocephalus during lockdown and without all of the usual symptoms, her Mum Lizzie tells their story so far.
The clock is ticking to double your donation!
Like all charities, COVID-19 has had a huge impact on us. We have seen the need for our work increase whilst fundraising and donations have decreased. The Local Giving Foundation has stepped up to help! Between 23rd of October and 9th of November donations to us made through this fund will be doubled through the […]
Trustee Vacancies
We have two Trustee Vacancies to join our friendly Trustee Board here at Harry’s HAT: Co Treasurer Medical/Clinical Representative When we first launched the charity we recruited friends and family with the appropriate skills to lead the board. Whilst this is how almost all small charities start, we are growing quickly and therefore recognise the […]
Dylan
Dylan has a condition called Achondroplasia, which is more commonly known as short-limb dwarfism. He is 20 and lives in Liverpool. Read his hydrocephalus story.
Harry’s HAT charity appoints new Chair of Trustees
Harry’s HAT is delighted to announce the appointment of Teri Kearsey as their new Chair of Trustees. Teri has over 15 years marketing knowledge and has experience across technology, healthcare and charity sectors. Alongside volunteering, she has been working in the voluntary sector for over 5 years and during that time helped to support hundreds […]
The Hydrocephalus Association have marked the US Hydrocephalus Awareness Month
The Hydrocephalus Awareness Month is a September initiative in the US that aims to raise awareness of an incurable brain disorder that affects 1 million Americans and one baby in every 1,000 born in Britain. In the US, 25 states and cities across the country joined Congress in declaring September Hydrocephalus Awareness Month. Throughout September, […]
Surrey Heath Duathlon supports Harry’s HAT
On Sunday 13th of September the Harry’s HAT team gave their time to support the Surrey Heath Borough Council organised Duathlon. The event which had originally been planned for March, was really well organised and everyone worked really hard to keep the competitors and spectators safe and socially distanced. Understandably, some of the competitors had […]
Beauty Banks care packages
Beauty Banks, a non-profit – like Foodbanks but with essential personal care & beauty items instead, have donated products for hydro-families who request them.