We are looking for parents and/or carers of children with hydrocephalus, based in England, to share their experiences of their child’s hydrocephalus diagnosis.  

We are aiming to put together a book which can be given to families at the point of diagnosis, to help them learn from others who have been where they are now.

We are looking for between 10-15 stories (of between 500 and not exceeding 1000 words).

The book is not for profit and will be distributed to healthcare teams in England, as this is where the funding is focused.

If people with the condition outside of England would like to share their own story then we would be delighted to share this on the guest blog section of our website and on our social media platforms. 

This project is funded by the National Lottery Community Fund.