Thank you to the wonderful Davood Ghadami
Thank you to the wonderful Davood Ghadami who took to the #BlackChair in aid of Harry’s HAT on tonight’s Celebrity Mastermind. Davood’s specialist subject was The Battle of Thermopylae. The programme aired tonight on BBC (26th January at 7:30pm available on i-player). We are thrilled that Davood won, scooping £3000 for Harry’s HAT in the process! […]
The gift of giving
It’s early but, if you switch on the TV, you’ll start to see adverts for Christmas. With Christmas, comes Toy Appeals. This piece is written by Caz in a personal capacity. I sit in a strange position. I have spent the previous twenty years of my life working for welfare charities, including women’s refuges and […]
Jenny’s ‘have a Happy or Happy-ish Halloween’
Written from her own experiences of supporting her hydro-hero Jethro. Here are Jenny’s top tips to help navigate trick or treating and/or Halloween with a child who has additional needs. Take the pressure off! Instagram is not reality! So if your child doesn’t want to do Halloween try not to let social media convince you […]
Jenny’s Bournemouth blog
I haven’t taken Jethro on an airplane yet. For me, the thought it too anxiety inducing. I think every family has to do what is comfortable for them, for us this means we have stuck to the UK shores so far. I’m sure one day I might be brave enough to take him abroad, until […]
Disneyland Paris: Rebecca’s Story
We decided at the beginning of the year, to take Violet, and our son Jett, to Disneyland Paris. Violet is six years old and has a programable VP shunt for her hydrocephalus. She has had 10 shunt operations so we knew we would need to be prepared but as this is the longest, she has […]
Jersey: Caz’s Story.
Harry has been desperate to go on plane, so we choose Jersey for our holiday this year. It is a short 40 min flight from Heathrow, so perfect plane ‘journey’ without the long-haul! Jersey is beautiful and had we had lovely weather we could have been anywhere in the world- the beaches are quiet, sandy, […]
Lauren’s story
Born at 32 weeks, Liam measured large on antenatal scans during pregnancy, and we were due a growth scan at 34 weeks. He weighed 5lbs at birth and was placed in the Neonatal Intensive Care Unit (NICU). My baby seemed healthy, and we were not offered an ultrasound head scan which is standard for premature […]
Vicky’s Story
This week I have had the privilege to communicate with Vicky and to ask her all about why she has taken on the challenge of the London Landmark Half Marathon on Sunday, in aid of Harry’s HAT. Vicky who communicates via British Sign Language has written her answers in her own words. Vicky is a […]
Lou’s Story
We have recently spoken to parents who tell us that they live in fear of a shunt complication. They want to know how they will know, what to look out for and how did you feel. Whilst we can’t give medical advice this series is first person live-experience account of managing a shunt complication. This […]
Tim’s Story
Inspired by Simon’s story and my wife Katie’s story I thought I would give my own account of our journey with our son Albie’s hydrocephalus. Albie was born in September 2016 and by all accounts no issues were identified on any pre-natal scans or at birth. I was already a dad of a then nearly […]