Ottilie’s story
This is Ottilie. Ottilie has congenital hydrocephalus, which began to be symptomatic when she was just three weeks old. When Ottilie was a tiny baby, we could see that she was extremely irritable and was clearly in pain. So, I took her to our GP, who told me she had colic. When Ottilie was nine […]
Aimee’s Story
Hi, my name is Aimee and I am a 20-year-old with hydrocephalus. When I was born, I had a 50/50 percent chance of survival. My mum was in hospital for three weeks before she had me and I was three months premature. This caused me to have a brain haemorrhage, which then caused me to […]
Double your impact for Hydro-Heroes this Christmas!
We are taking part in the #BigGiveChristmasChallenge From the 3rd December until the 10th of December any donation you make to our Hydro-Heroes project will be doubled. Your fiver WILL be turned into a tenner, and this means we can support more children and their families affected by hydrocephalus this Christmas and beyond. As a tiny […]
Early Day Motion
On the 15th October 2024 Alex Brewer MP tabled an Early Day Motion (EDM) in the House of Commons calling for a review of infants’ head circumference to be regularly measured to improve the early detection of hydrocephalus. To date 18 ministers have supported the motion which can be viewed here. https://edm.parliament.uk/early-day-motion/62596 Alex Brewer was inspired […]
Living with Dan
In the early seventies, our first child Danny was born. My wife Christine had a very difficult and protracted time delivering him and was sedated. Danny was presented to me in an incubator before being transferred to a specialist children’s hospital, as there was visible Spina Bifida and likely hydrocephalus. We were advised that, if […]
Phoebe’s story
Phoebe is an identical twin, born at 30 weeks. The run up to the girls’ birth was stressful and scary, due to how poorly I became with pre-eclampsia. When Phoebe was born, they did a routine cranial ultrasound to check for something called an intraventricular haemorrhage (IVH). Unfortunately, Phoebe had a grade 2. The doctors […]
Lucas on Countryfile
Young Ambassador Lucas was featured on Countryfile on Sunday 22nd of September. Lucas, who is taking part in the Countryfile Big 10-Year Ramble, spoke passionately about hydrocephalus and the impact it has on his life. His parents Lou and Dave spoke about how hydrocephalus impacts them and how being part of the Harry’s HAT community helps […]
ITV shares the Open Letter
We are delighted that ITV have shared our open letter to the Health Secretary Wes Streeting MP, highlighting our call for a review of infant head circumference measurement in the UK. The pieces were shared across many regions and from the feedback we have received we know that they resonated with many viewers.
Sellebrity Soccer
The crowds flocked to Yateley United Football Club to see a host of celebrities from the world of football, social media and TV to do battle on the football pitch. Not only did the event raise a huge amount for the charity but the celebrities learnt more about hydrocephalus and shared our petition for change […]
Lambeth Palace
The sun shone brightly for the open garden at Lambeth Palace. We welcomed over 700 visitors who came to visit the beautiful palace gardens and learn more about the charity. Before the gardens opened to public, we were also able to host a private event where we talked about the charity and progress of our […]