IMPORTANT SAFETY INFORMATION: YONDR POUCHES
WHAT DO I NEED TO KNOW? More secondary schools are now using Yondr pouches, or similar systems, to support phone-free learning. These systems require students to place their mobile phones in a small locking pouch at the start of the school day. Students keep the pouch with them throughout the day, but cannot access their […]
World Hydrocephalus Day
Hydrocephalus is a build-up of fluid in the brain, which can put pressure on the brain and cause damage. I’ve learnt a lot about the condition after my daughter Eliza was born and I’m keen to raise awareness about how others can support children with Hydrocephalus. Life has been quite different for me and my […]
Welcoming Jez Hanson as Chair of Trustees and Introducing New Trustee, Faye
We’re delighted to welcome Jez Hanson as the new Chair of Trustees at Harry’s HAT. Jez steps into the role following Harri, who has been a dedicated Trustee since 2020 and has served as Chair for the past two years. During her time at the helm, Harri has worked tirelessly behind the scenes to lay […]
Rio’s Story
Rio became very ill with sickness and headaches in January 2023. After multiple visits and blood tests from the doctors all came back clear, they finally agreed to give Rio an MRI, which changed our lives forever. Rio was diagnosed with a brain tumour in June 2023, when he was 8 years old. The tumour, […]
Naomi’s story
Edith was born at 31 weeks via an emergency C-Section and is one of identical triplets. Unfortunately, due to prematurity, she suffered a brain bleed. This bleed was found whilst she was in the NICU. Edith had two spinal taps but, due to the bleed blocking the ventricles, the pressure in her skull built up […]
Being a Working Mum of a Hydro Boy
When Jethro was diagnosed with hydrocephalus, I was on maternity leave. Thankfully, thoughts of work didn’t even factor into the need to be with my boy. When I returned to work, I had already let my manager know what the situation was. In the two jobs that I have held since, I have been open […]
Shawney’s Story
Rose has congenital hydrocephalus, caused by Aqueductal stenosis. We found out about Rose’s hydrocephalus at our 20-week scan, and she was monitored throughout the pregnancy, with lots of extra scans at our nearest specialist neurosurgical hospital. As Rose was well when she was born, the plan was to monitor her head circumference rather than intervene […]
Yasmin’s Pregnancy Blog
I was diagnosed with congenital hydrocephalus when my mum was 37 weeks pregnant. When the hydrocephalus was discovered, I was delivered by planned caesarean the following day. As this was in the mid-nineties, there was limited information about hydrocephalus. Upon receiving my diagnosis prior to delivery, my parents were given an A4 piece of paper […]
Harley’s Story
In December 2023, our son Harley was born. It was the most wonderful birth and the perfect present, bringing home our third baby to his big sister and brother just in time for Christmas. In January 2024, our whole family was struck down with a sickness bug. However, once the rest of us had recovered, […]
Speaker’s House State Room
On Thursday 6th of February, at the invitation of the Speaker of the House, Sir Lindsay Hoyle MP we held an event in the State Rooms within the House of Commons. The aim of the event was to highlight the progress of our Get-A-Head campaign and to the launch the next phase, which is calling […]