Colours
Learning and exploring colours As you get to know Rueben and I more, you will see I try to focus on one topic for a length of time to help really enforce the learning we are doing at home. Over November, we looked a lot at colours and did a few activities, learnt some Makaton […]
Steph’s Page
Introduction Hi, my name is Steph and I am a mummy to a hydro-warrior called Rueben. He is two years old but has been on quite a journey. He was born at 23 weeks and due to bilateral brain haemorrhages, he has acquired hydrocephalus. He is a very complex little boy with lots of other […]
Halloween
Not-so-scary Halloween fun! This Halloween we have been trying to find some fun and exciting things to do as a family. Halloween can be too scary for some children – I definitely was one of those who found it hard! Here are some fun and friendly things we have done this season to help Rueben […]
Thank you to Shreya
Seven year old Shreya has raised £710.00 for Harry’s HAT. Her motivation for her tremendous fundraising was to learn more about hydrocephalus and help other children with the condition.
Visit our shop
Visit our shop. We are now selling Harry’s Big Bobble Hats and Harry’s HAT branded face masks. The Hats are one size fits all. The face masks come in adult and children’s sizes. All the money raised will go directly to support our charitable work. We would like to thank Clare at Freddie Fox and […]
St. James’s Place Foundation
A huge thank you to Rob from Roxburgh Financial Management who represented our application at the recent St James’s Place Foundation, panel meeting. We are delighted to announce that our bid was successful and the £2500 grant has now been received! Rob said, “Roxburgh are delighted to represent the St. James’s Place Foundation to help […]
Imposter syndrome in the special abilities jungle
Before Harry came along I had always thought that, if my child had ‘special abilities’, I would find a team of parents in the same boat and would live in a sort of ‘mutual understanding social bubble’ (sounds very COVID 2020 now!) I learnt very quickly that, despite the world of social media, instant connections and Google, it […]
Along came Harry and then Harry’s HAT.
From day one, my pregnancy with Harry didn’t feel quite right. I bled lots, ended up in hospital at 16 weeks and felt horribly anxious throughout. Outwardly, however, I looked good. My thin hair had thickened, my skin looked pink and the boobs were fairly impressive! Midwives kept telling me that as an ‘older mother’ […]
The Coronavirus and me (well, Harry)
*Written pre-lockdown Like most of the working well population, when this horrid Coronavirus thing initially started to break the thought of two weeks of self-isolation sounded great. No juggling meetings, no school runs and I might actually get to read the book I bought back in 2005… However, it is progressing at an alarming rate. Whilst, […]
But he’s MY brother
When we launched Harry’s Hydrocephalus Awareness Trust – or ‘Harry’s Charity’ as Lewis, Harry’s seven-year-old ‘little, big brother’ calls it – it was all about finding a cure. We didn’t (and still don’t) want Harry to live with this condition forever and surely, we thought, there must be a better way. Fast forward a year […]