We have just published our first book!

Hydrocephalus: What I wish I’d known is aimed at families affected by hydrocephalus, especially those who are just starting out on their journey.  The 42 page book is packed full of parent stories, first-person hints and tips, as well as useful resources.  It has a section suggesting questions you may like to ask, information about shunt blockage and a glossary of medical terms to help you navigate your ‘new normal’.  The book has been illustrated by the author and illustrator, Tom McLaughlin and aims to provide comfort at a time of anxiety. 

You can order your hard copy here, or contact us to receive a digital copy.